Figuring out how to manage your chronic conditions is often a years-long work in process that never really ends. My newest experiment is a continuation of my on-again, off-again relationship with exercise.
This last week has been a combination of fatigue from jetlag and reducing my medication again. I’ve had to get more sleep and rest more after appointments and work. I’ve had to work harder to prioritize rest and not over-schedule myself.
I spend a lot of my time lying down. One of the things I love about working from home is being able to work lying down. I also relax lying down. The existence of laptops means that I can literally work with my computer on my lap every day. Sitting or standing for too long triggers pain throughout my back. Often sitting and working at a desk makes my upper back (between my shoulders) scream and shout—I feel deep stabbing pain and long-drawn-out soreness. Standing too long triggers my lower back and makes it ache and ache.
There are a number of reasons that I struggle to get out of bed:
I often feel like an expert in being chronically ill. I know how to look up doctors on my insurance company’s website. I know to ask if they cover me just in case when I make an appointment. I know to ask if the tests are covered as well when they suggest something. I know how many physicals and dental check-ups I get a year and I know what out of network versus in network means. I know how to get reimbursed for out of pocket expenses. I know what an FSA is. I know I can ask my pharmacist if the medications I take could have dangerous interactions.