Over the years, I have developed my own morning and evening routines, based on what I need and want to do. I do not try to do what other people need or want to do in these routines anymore.
Figuring out how to manage your chronic conditions is often a years-long work in process that never really ends. My newest experiment is a continuation of my on-again, off-again relationship with exercise.
This last week has been a combination of fatigue from jetlag and reducing my medication again. I’ve had to get more sleep and rest more after appointments and work. I’ve had to work harder to prioritize rest and not over-schedule myself.
I spend a lot of my time lying down. One of the things I love about working from home is being able to work lying down. I also relax lying down. The existence of laptops means that I can literally work with my computer on my lap every day. Sitting or standing for too long triggers pain throughout my back. Often sitting and working at a desk makes my upper back (between my shoulders) scream and shout—I feel deep stabbing pain and long-drawn-out soreness. Standing too long triggers my lower back and makes it ache and ache.
There are a number of reasons that I struggle to get out of bed: